Our New Normal [s] » Our little family's realization, that there is no normal

Tag Archives: how to cope

Hiatus: Life Interrupted – Gabe’s Thoughts

Hiatus Back in July when this idea was born it was supposed to start, develop and end, with a nice bow at the end…. or, as they call it in the film world, a denouement, a dramatic unraveling of the plot. You know, the final sequences when the bad guy is caught, boy gets the […]

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Faith in Action: Guest Blogger Kim Poston Miller

It’s pretty easy to be a “good” Christian when things are going well. It’s easy to trust in God, have hope and faith when life is running on the smooth side.  I mean, why wouldn’t you feel great and comfy when everything is hunky-dory? That is were we were about 5 years ago. My husband […]

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The thing about Fear: well… 5 things.

Before we move on to other things, I wanted to talk about the elephant in the room – FEAR. We’ve all felt it. The moment we see a tiny red mark on our child’s cheek, or they say, “My arm hurts” or “Im tired”- those of us with children conquering chronic life-threatening illnesses know that […]

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Don’t Be Surprised

Behold, I have refined you, but not as silver; I have tried and chosen you in the furnace of affliction. Isaiah 48:10 (Amplified Version)   Gee, thanks! Sometimes I think that we, parents of children overcoming weird conditions or affliction, if given the choice, would choose a different life for our little ones. But, alas, the […]

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Day 24: The Courage to NOT DO anything

Do NOTHING. Psalm 46:10 “Be still and know that I am GOD.”   One sure thing about this blasted disease Juvenile Dermato-myositis, JDM, is that it is unpredictable. And up to date and up to a point, unknowable. So what do we do when our hopes for improvement get dashed by familiar, scary, expectedly unexpected […]

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Day 21: My help comes from Him, and occasionally a glass of wine.

I guess closing out this week on disappointments would not be complete without something fresh to report on, and a few tests. And what a perfect segue into our week dealing with FEAR and COURAGE! Tonight, I found a stash of pills (about 14 or so) that VV is supposed to have been taking in […]

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Day 20: Of disappointments, setbacks and beat downs – Part 3

My Pursuit What does it mean? This is the 21st Century, after all. We are reading this in a blog; thanks to this amazing technological development we call social media. There no armies to fight, no Amalekites, no Philistines, no Ziklag, no burning ruins… Our chase as a family is different than my pursuit as a […]

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Day 19: Of disappointments, setbacks and beat downs – Part 2

Yesterday, we talked about bitterness. My recipe for a great “Cuba Libre” calls for a little bitterness (Angostura Bitters to be exact), but only two drops. Other than that, bitterness in our lives is not a good thing. You know yourself and you can tell better than anyone which path you have chosen after your […]

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Day 13: Make a W.I.S.H. – the power of our words, part 2

What I Say Happens, Part 2 So, yesterday we talked about the power of our words and how we can actually speak things into being. And I promised I would give you another reason, if you weren’t convinced the first time. Have you ever heard the phrase- “You’ll eat those words?” Do you know where […]

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Day 12: Make a W.I.S.H. – the power of our words, part 1

Day 12: Make a W.I.S.H. – the power of our words, part 1 Good morning fellow Extraordinary Mummies and Daddies, Caregivers and Friends! Today, during this week of Promise, is a day I want you to write down in your calendar. Because your life is going to change- starting today! I know that the day I […]

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