Our New Normal [s] » Our little family's realization, that there is no normal

NEW(s) – Summer Update 2017

In one door, out the other.

Just as we are catching a breather and celebrating and reveling in Vivia’s remission (after a LONG 7 years journey see VIVIA’s STORY), it seems we are about to embark on another unexpected (although not nearly as horrific) venture.

Rio’s specialist appointment earlier this month discovered another related birth-defect that was previously not seen (he’s missing a piece of his skull) and now requires a CT scan (under sedation) tomorrow at 10am to see what (if anything) they can do about it. Prayers Please! On top of that, the Cranio-Facial specialist took one glance at his 360* xray of his jaw and told us he was/is going to need another surgery and wants him to have it before the end of the year. 😱😭

No matter how many times I’ve been to the rodeo, when it’s in regards to my¬†kids – it always feels like my first. I know he’s a trooper. I know he’s strong. I know he’ll be “fine,” but each time; I have to go through the resurfaced emotions of “WHY MY KID?”

“Why” is a dark and distant land, and I never let myself¬†visit that place. But one day, I owe it to myself to allow at least one visit – with Jesus by my side.

I am so grateful for these amazing children that we have been given, and I have to remind myself that this is what we signed up for when we decided to become parents. You sign up for all the exhilarating fun of Vacations and Christmases, but also all the heartbreak of experiencing their pain, suffering and rejection.

I wouldn’t trade it – but I also wouldn’t wish it on my worst enemy.


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